Riding a relief from severe allergies

Pennies for Presents buoys Children’s Health Foundation

Ethan Schandl smiles from atop his horse Smudges as instructor Kyrie Bond looks on during a session at the Victoria Riding for the Disabled Association.

As a newborn, Ethan Schandl had severe reflux and troubles eating, sleeping and feeding.

His mother Fiona Schandl was sent home from the hospital without an explanation, told only that her baby was failing to thrive. Three years of testing eventually led to a diagnosis for the Schandls, but one that offered little relief from their daily struggles.

Ethan is allergic to food.

Now five years old and just 15 kilograms, Ethan lives off a diet of broccoli, cauliflower, potatoes, squash, yams, applesauce and hypoallergenic formula.

“It’s an ongoing battle,” Schandl said of her son’s eosinophilic esophagitis. “It’s something that he’s going to have to live with forever. It’s not a static condition either, so these six things that he has tested fine for could turn on him at any point.”

Ethan works with a host of medical professionals for issues related to his allergies, as well as one weak leg and core muscle issues. The Schandls have long been connected to a team at the Children’s Health Foundation in Saanich, from occupational therapists and physiotherapists to speech pathologists and dieticians. This year the foundation’s Bear Essentials program gave $1,000 toward horseback riding lessons for Ethan, a therapy intended to strengthen weak muscles, a result of his nutrient deficiencies.

The sessions yielded unexpected results for Schandl.

“It gave him an activity for him that wasn’t food related, that didn’t need a lot of energy,” she said. “He absolutely loves it. It’s his special time, a time that he’s able to control things. With his diet, we very much control it, but with the horseback riding, they let him take the lead and tell them what he wants the horse to do.”

Ethan is currently trying to eat chicken, beef and oats. Schandl had added pork and corn to his diet, and both caused adverse reactions. Each time new food trials begin, so do the rounds of scopes and biopsies to determine whether or not his body will accept the foods.

He has already endured 12 procedures, including several biopsies performed under general anaesthetic.

“When he wakes up, he doesn’t like to eat and he doesn’t like to drink. We typically stay in the hospital for longer than most kids would for a procedure … because he won’t let enough liquids in to get the IV out. This last one, he almost passed out when the IV came out. That was pretty scary in itself.”

Despite the ongoing hospital stays and the physical challenges his leg presents, Schandl says her son is altogether pleasant to be around.

“He’s lovely, happy and smiley and super funny. He suffers a lot, but you really wouldn’t know it to see him.”

The Children’s Health Foundation of Vancouver Island is one of this year’s recipients of funds from Black Press’ annual Pennies for Presents campaign, along with the Victoria Salvation Army. From now through Christmas Black Press is collecting donations – in the form of pennies, nickels, dimes, quarters, bills and cheques – at the Black Press office at 818 Broughton St. Collection jars will also be placed at businesses throughout Greater Victoria over the course of the campaign. Pennies for Presents is an Island-wide initiative, but all the money raised here stays in Greater Victoria.

Donations to the Pennies for Presents Campaign can be dropped off during office hours (8 a.m. to 5 p.m., weekdays) throughout December or at any of the following businesses.

Mayfair Flower Shop – Suite 158-2945 Jacklin Rd  Langford

Quality Cobbler – Suite 140-2945 Jacklin Rd  Langford

Corona Foods – 2155 Sooke Rd

Dodds Furniture – 715 Finlayson Street  Victoria

Heirloom Linens – #380-777 Royal Oak Drive

Red Barn Market – 751 Vanalman Avenue, Victoria

Red Barn Market – 5550 West Saanich Road, Victoria

Red Barn Market – 5325 Cordova Bay Road, Victoria

Peppers Foods – 3829 Cadboro Bay Road, Saanich

Oak Bay Pharmasave – 2200 Oak Bay Ave. Oak Bay

Salon Modello – 2590 Cadboro Bay Road

Slater’s Meats – 2577 Cadboro Bay Rd, Oak Bay

Verico Select Mortgage 105-1497 Admirals Rd, Victoria

Verico Select Mortgage Westshore – 3212 Jacklin Road

Verico Select Mortgage – 1925 Oak Bay Avenue

Verico Select Mortgage – Suite 110-4460 Chatterton Way

Brick Langford – Suite 500-2945 Jacklin Rd

Capital Iron – 1900 Store Street  Victoria

4Cats Art Studio – 2279 Bowker Avenue

Standard Furniture – 758 Cloverdale Ave

Feys+Hobbs Canteen – 2249 Oak Bay Ave.

Goldstream Food Market – 976 Goldstream Ave.

Just Posted

Esquimalt café cooks up connections for all abilities

A Kinder Cup focuses on positivity, inclusivity and connection

Free bike exchange program available to Greater Victoria kids

The Re-Buy-Cycle Shop in Langford offers free bikes for young learners

Central Saanich sparks up new opening burning bylaw

New bylaw offers ‘balanced approach’ between status quo and tougher provincial regulations

Oak Bay father’s testimony at murder trial like plot of ‘bad low-budget movie:’ Crown

Crown alleged Andrew Berry’s ‘entire story of Christmas Day is a lie’

PHOTOS: Hundreds gather in downtown Victoria for Extinction Rebellion climate protest

The rally is the kickoff to the Global Climate Strike Week of Action

PHOTOS: Young protesters in B.C. and beyond demand climate change action

Many demonstaers were kids and teens who skipped school to take part

Graffiti, calls and Snapchat: RCMP probe string of threats targeting Kamloops schools

There have been nine different threats made to four different schools in the city

B.C. truck drivers to face higher fines for not using winter tire chains

As of Oct. 1, not using chains on the highway when required could net you a $598 ticket

Singh campaigns in Toronto, May in Winnipeg, as Liberal and Tory leaders pause

All parties expected to be back on the campaign trail Sunday

Possible Canadian cases of vaping illnesses being investigated: health officer

‘I think that will be really important to address the overall trend of youth vaping’

Area 51 events mostly peaceful; thousands in Nevada desert

Three more people were arrested Friday on the remote once-secret military base

B.C. First Nation signs agreement to return its land on Vancouver Island

The land on the east coast of Vancouver Island will be returned to the We Wai Kai Nation

Former B.C. lifeguard gets house arrest for possession of child porn

Cees Vanderniet of Grand Forks will serve six months of house arrest, then two years’ probation

How to react to Trudeau’s racist photos? With humility, B.C. prof says

‘We are now treating racism as a crime that you cannot recover from’

Most Read