LETTER: Change the conversation about dementia

The Alzheimer Society of B.C. thanks the people of Greater Victoria for their encouraging response to January’s annual Alzheimer’s Awareness Month and to our campaign intended to challenge stigma surrounding the disease: “Yes. I live with dementia. Let me help you understand.”

Recently, the Canadian Academy of Health Sciences released a report by a panel of dementia experts highlighting priorities for a national dementia strategy, work undertaken by the Public Health Agency of Canada in 2018. The authors emphasized the importance of adopting healthy lifestyles that might prevent or delay dementia, as well as overcoming stigma and fear of living with dementia. They stressed that it’s possible to live well with the disease.

Increasingly, when we talk about raising awareness about Alzheimer’s disease and other dementias, we need to talk about challenging stigma. Negative attitudes about the disease mean that when someone begins to suspect that they – or someone close to them – might have dementia, they are less likely to seek out a diagnosis. They’re less likely disclose their situation to others. Worrying that someone will judge them or think of them as being less of a person means people are less likely to ask for help.

The dementia journey can be incredibly isolating. When we talk openly about the disease and challenge preconceived notions, people living with dementia begin to feel like they aren’t alone and can ask for help. They can better prepare themselves for the challenges ahead. Communities play a key role in helping people living with dementia, their families and caregivers feel like they belong, just by being aware of the disease and actively engaged with learning more about it.

With over half a million Canadians currently living with dementia – a number that will only grow as the population ages – it has never been so important to be open to having a conversation about dementia. It’s never been so important to change the conversation.

RELATED: Jann Arden’s mother, who had Alzheimer’s disease, dies

Though Awareness Month is now over, you can still visit ilivewithdementia.ca. Find tips on how to be more dementia friendly, as well as resources to take action against stigma and be better informed about a disease that has the potential to affect every single one of us. You can also use the hashtag #ilivewithdementia to help spread the word.

We would like to thank our local staff and volunteers for their work. We also appreciate the local media’s coverage of dementia issues. The stories help foster a better understanding of the impact this disease has on local families and help the Alzheimer Society of B.C. work towards our goal of a dementia-friendly province.

If your family lives with Alzheimer’s disease and other dementias, please contact our regional Alzheimer Resource Centre at 250-382-2052 for information on support groups and the many other services we offer to assist you. You can also call the First Link® Dementia Helpline at 1-800-936-6033 and visit www.alzheimerbc.org.

Gabriela Townsend

Support & Education Coordinator, First Link

Alzheimer Society of B.C.

Just Posted

Royal Roads University to host a Black History Month panel

Four speakers will discuss being of African heritage in B.C.

VIDEO: Friday night fire outside Saanich Staples

Witness says two employees helped put out blaze

Victoria non-profit empowers women escaping abusive homes with a fresh start

Organization’s gift certificate program helped around 400 women last year

VIDEO: Royal Bay Secondary students take flight in ‘Peter and the Starcatcher’

Play tells the story of the orphan who becomes Peter Pan

Volunteers begin work on memorial garden for former Metchosin counsellor

Garden a fitting tribute to Moralea Milne, a champion of Garry oak ecosystems

VIDEO: Iconic ‘snow cone’ takes shape at B.C. park near Clearwater

Snow cone forming at Wells Gray Provincial Park one that would make Disney’s Queen Elsa proud

POLL: Will you be wearing pink to take a stand against bullying?

Schools and workplaces across Greater Victoria and around the province will be… Continue reading

Pink Shirt Day a reminder to ‘T.H.I.N.K.’ before posting on social media

‘Be Kind’ message on shirts sold for anti-bullying activities of Wednesday, Feb. 27

A ‘warm embrace’ for grieving parents at funeral of seven young fire victims

Mourners offered love and support to Kawthar Barho, mother of seven children

Indigenous leaders, politicians say Trans Mountain report flawed

The National Energy Board has endorsed an expansion of the Trans Mountain pipeline a second time

UPDATE: Reports of rashes prompt closure of all Harrison Hot Springs pools

Public pool available after Fraser Health shut down all five mineral pools until further notice

Legislation to protect B.C. farmland comes into effect

Regulations enhance food security, encourage long-term farming

Have you heard the legend of Shuswaggi, the Shuswap Lake monster?

Witness accounts as old as 1904, and as recent as 2018, place a creature in the lake’s depths

UPDATE: B.C. ticket holder winner of $25.9-million Lotto Max jackpot

Next draw set for Mar. 1 with an estimated jackpot of $10 million

Most Read