Members of the Dragon Flyers dragonboat team paddle along the Gorge during practice Monday. The team is raising awareness around mitochondrial disease that teammate Marilyn Carr-Harris (centre) was diagnosed with three years ago.

Dragonboat team raises awareness of mitochondrial disease

The Dragon Flyers are raising awareness of mitochondrial disease, a disease one of their teammates suffers from.

Imagine a house that runs solely on a generator or a cell phone that constantly runs on five per cent battery. For Victoria’s Marilyn Carr-Harris, life is like running on low battery all the time.

“You only have energy for one thing at a time like doing your laundry. That’s me,” Carr-Harris said. “I go through the day and I use up my energy, by the end of the day I don’t have any energy left.”

Carr-Harris, a librarian, was diagnosed with a mitochondrial fatty acid oxidation disorder three years ago. The disorder prevents her body from breaking down certain types of fats and as a result, she has fatigue, poor muscle coordination and fluctuating muscle weakness.

“Once I got the diagnosis, my life became a lot easier. I was relieved, it was scary too. I’ve seen myself progress over the years,” she said, adding she went for 10 years without being properly diagnosed. “Ii was about to adapt my lifestyle.”

Now, Carr-Harris has a modified diet, lifestyle and medications. She has the most energy in the morning, but throughout the course of the day she deteriorates.

But that hasn’t stopped her from doing what she loves.

Every Monday evening, Carr-Harris straps on her lifejacket and heads out to the Fairway Gorge Paddling Club to practice with the Dragon Flyers dragonboat team.

The team has been paddling together for the past three years and picked up a bronze medal at the Nanaimo Dragonboat Festival last year. Most recently, they won third place in their division at Gorge Fest last weekend.

“Paddling has been an important part of my life. I’ve discovered that I’m able to move my body in a different way and I feel a lot freer on the water,” Carr-Harris said. “Something just kicks in. Dragon boating is pretty special because you’re hitting the water at the same time as your teammates. It’s like you become one bigger unit.”

This year, the team is raising awareness of mitochondrial disease.

“Throughout the past few years paddling with Marilyn, it’s just frustrating seeing the little awareness that is in the health system,” said team captain Sandra Der. “Marilyn is my friend, it hurts to see what she has to go through — just to normally be able to swallow, eat or speak.”

Andrea Pleven, head coach, said despite Carr-Harris’ disease she continues to be an inspiration to the team.

“Marilyn is such a positive influence in the boat because we all know abut her mitochondrial disease and how it effects her,” Pleven said. “You can see how hard she works because we literally lift her out of the boat because she works that hard. She’s quiet but she’s a force to be reckoned with.”

Carr-Harris and the Dragon Flyers will compete at the Victoria Dragonboat Festival this weekend (Aug. 14-16). For more information, visit victoriadragonboat.com.

 

Just Posted

Sooke school district creates new comprehensive school health position

Ruchi McArthur will develop framework to improve wellness of students

B.C. police watchdog investigating high-speed crash in Victoria

Police watchdog called in after dramatic early morning crash at Bay and Douglas intersection

VIDEO: RCMP officer killed in the line of duty remembered ‘through the laughter of children’

Sarah Beckett Memorial Playground opens with ceremony in Langford

Westhills Stadium launches expanded stadium with ceremony, excitement

expanded stadium accommodates 6,000 spectators

NCAA basketball comes to UVic this fall

Eight-team tournament features top university women’s basketball teams Nov. 28-30

Trudeau to meet with U.K. and Japanese prime ministers ahead of G7 summit

French President Emmanuel Macron, this year’s G7 host, has little expectations of a unified front from the leaders

B.C. RCMP plane chases fleeing helicopter as part of major cross-border drug bust

The helicopter eventually landed at a rural property near Chilliwack

Vancouver Island man dead after reported hit-and-run incident

Oceanside RCMP seek public’s help gathering information

Thousands cycle to conquer cancer

The 11th annual Ride to Conquer Cancer took place Saturday morning, Aug. 24 in Surrey, B.C.

PHOTOS: Brazil military begins operations to fight Amazon fires

Amazon fires have become a global issue, escalating tensions between Brazil and European countries

Racist confrontation in Richmond parking lot caught on camera

Woman can be heard yelling racial slurs, swear words at woman in apparent parking dispute

Groups ready campaign to help young voters identify ‘fake news’ in election

The media literacy campaign to focus on identifying misinformation and suspicious sources online

Big rally in northern B.C. draws attention to continuing lumber crisis

Mayor Joan Atkinson says about 400 workers have been directly affected by the closure of the Canfor mill

Orangeville Northmen take Minto Cup at Langley Events Centre

Swept best-of-five series 3-0 over Victoria Shamrocks

Most Read